Brayden Alexander Global Foundation For Hydranencephaly   

GHF is a registered nonprofit providing individualized family support and medical or educational advocacy services to families across the globe that are facing diagnosis of hydranencephaly for a child in their care. Through the building of strong parent advocates and varied awareness efforts, we are working to shine a brighter light on the possibilities that exist for these children despite the medically subjected odds stacked against them. Read our mission and vision statement. Learn more about hydranencephaly.

VISION: Global Hydranencephaly Foundation started in 2011 as Brayden Alexander Global Foundation for Hydranencephaly and just as our name has evolved, we also understand the need for our mission to evolve as well. Family dynamics change. Services expand. Needs grow and morph in to something that looks different just about every year. One thing that never changes is the need for accurate information and advocacy services for the 1 in 100,000 births that statistics would have us to believe are affected by hydranencephaly across the globe.Speaking of statistics, however, this is part of the challenge – the inaccuracy of those statistics, which we are working to correct.